Beautiful baby boy forced to live in a plastic bubble!

April 16, 2008

Bubble Boy: The true and sad story of Sebastian Luis that is forced to live in a plastic bubble!
Bubble Boy DiseaseI got a phone call the other day from my friend. He asked me: “What would you do if your little boy is forced to live in a bubble? To see your baby suffering and not be able to hold him whenever you want?”

This is a heart breaking story that i just had to write about.

My friend’s cousin is going through exactly this nightmare. His son is very sick, he is known to be the boy in the plastic bubble. Sebastian Luis, called Sebi is a beautiful boy with gray eyes, amazing smile, and only 10 months old. But unfortunately, he has SCID called also “bubble boy disease”, extremely rare and dramatic condition: he may be forced to live his life in a bubble.

Every day, every hour is for Sebi a fight to survive infections, because he was born with a dead immune system meaning that he has to live in sterile conditions or risks picking up a life-threatening infection. Read more


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